My weekend was a quiet and restful one. Greg dropped me off at my friend/sis house to get my hair done on Saturday morning. In the afternoon, he picked me up and we went back to his place where his mom, dad, sister, and niece were visiting. Sienna, Greg’s niece, is so sweet. She just turned one and is an absolute riot.
After they left, Greg and I planned to perhaps go see a movie. We got into bed to watch something on Netflix before getting ourselves together and heading to the theatre. We didn’t stay awake long enough to even put a movie or show on. I woke up, lying on my stomach, with my nose in nestled in Greg’s armpit, while Greg slept on his back with his arm around me. This was about 2 hours after we had gotten into bed.
We were perhaps a little ambitious with our plans, as both of us were feeling under the weather, and both of us really only wanted to go out to appease the other.
We spent another lazy hour in bed before getting online and ordering some dinner via the Just Eat app. I like this app not only because it gives you a variety of places to choose from, but also because you can almost always find a discount code online. I found a 20% discount code online and saved a bunch on our dinner.
Anyway, this isn’t a Just Eat commercial lol. We got Chinese food from this place called Duckee. It was good stuff. The general Tao chicken was delicious.
On Sunday, we caught a 12:30 showing of Snowden. We got to Yorkdale early so we were able to have some brunch and Michel’s, grab some coffee at Starbucks, then head over to the theatre. The rest of our day was pretty low key.
But today though. I got to work and was working on a number of things since my partner is off work for a short while. I then all of a sudden got an email invite for a meeting with regards to a manager’s conference happening next week. The senior director asked me to bring the budget with me. Um…I hadn’t created a budget. Now I had about 2 hours to “create” one lol. All this while still managing 3 other mailboxes and also responding to emails in my personal mailbox. On top of that, I was tasked with coordinating some work that is being done at our offices overnight. Some workers are coming in overnight to do stuff, so they have asked us to remove all of the stuff from our desks and put them into bins. They are actioning this in 4 steps so that everyone isn’t putting all of their stuff in boxes at the same time.
Let’s just say that I was getting pulled in every direction today. I’ve gotten most of the stuff out of the way in terms of emails sent on Friday after 4pm and up to Monday morning, but there is one mailbox that I’ve barely touched and it has at least 20 emails from 20 different candidates in it.
I love every minute of it!
A week or so ago, I got a message from my kidney transplant coordinator. She told me that my nephrologist had gone over my blood work and decided to drop the dose of one of my immunosuppressants. My dose at the time was 12mg a day and he wanted me to drop it to 10mg a day.
I thought ok, that’s cool. I currently take four 3mg pills of this medication. It’s called advagraf. I happen to have some 1mg pills left over from last year, so I’ll use one of those pills and three of the 3mg pills. In the meantime, I responded to my transplant coordinator and asked that she call my pharmacy and leave a prescription for 10mg pills of advagraf for when I’ve run out of my current stock. I asked her to do 2 months per refill, as I usually ask for 3 months. There is a reason for this, which I will explain shortly.
For most of us, the start of the new year signifies a new beginning. Some people establish New Years’ resolutions. Others simply see it as a clean slate. Me, I get a small sense of dread. I feel this dread because I know the deductible period for my medical coverage through work starts again. That means that the first few prescriptions that I fill will cost me an arm and a leg.
As my current cache of advagraf began to dwindle, I know the time is near for me to fill this new prescription along with some other ones that are coming due as well. Not wanting to be paralyzed by sticker shock, I called my pharmacy to ask what the damage would be for just that one medication. $314.12. I cheerfully thanked the pharmacy tech that I spoke to. I didn’t want to let on that I felt like I was gonna throw up. I feel this same way every year at this time.
When I told my transplant nurse to only give me a 2 month supply, it was because I knew it would cost me a whole bunch of money at once if I filled 3 months worth of advagraf at one time.
This one prescription costs me much more than half of my biweekly payroll deposit, and I almost always get 3 or 4 other prescriptions at the same time-pretty much an entire pay cheque. I also get coverage from the government-all I have to do is submit my prescription receipts and they will reimburse me some money based on the amount of money I make. Pretty cool, huh?
I’ve learned to stop wasting my time by mailing those receipts. I send these receipts and wait from 3 weeks to a month for a response…not including the occasions where things went wrong and things got delayed. My receipts were never received, so I had to go back to the pharmacy and track down all these receipts again and resend them; they don’t want photocopies. Or, there is a certain code missing from the prescription, and without that code, they cannot assess my claim. Gotta go back and have my doctor write a note with the code, or write a new prescription. I always get a response back telling me that I would be betting zero dollars back, as I haven’t yet reached or surpassed my deductible. On the few occasions where I’ve actually gotten a few bucks back…they send you a letter telling you how much you’ll get back…then they MAIL a cheque about a month later. How about saving some time and sending me the cheque with the first letter!?
Hard core digressing.
I work part time right now. I’m looking for full time work in my field…but at the same time, I’m kinda scared. I’m scared that I won’t be able to work full time. I’m scared that the stress of 40 hour work weeks will be too much. But I cannot stay in my current job either, as I actually really dislike what I’m doing. I’ve been doing this going on 13 years now…and I’m ready to move on. If I don’t work full time, I’ll never be able to move out from my parents’ house to a place with my boyfriend. But, if I do work full time…am I setting myself up for failure? If I do move out and work full time…sure, I’ll be making more money, but my other expenses will increase exponentially as well.
I don’t know…I guess all I can do is try. The role I’m in makes me feel tired, drained, and unmotivated. Maybe if I’m doing something where I feel challenged…challenged in the right way…i won’t feel so tired, drained, and unmotivated. Maybe a change of scenery would be good for me.
I’m currently making what I feel are the appropriate moves to help me go in the direction that I’m looking to go. I’m not the first one with a medical condition to work full time…all I can do is try. Only time will tell.
The last few months have definitely been eventful, both for amazing and not so amazing reasons.
My creatinine is still acting crazy. At last check, it was 170-something. It has been hovering in this range for the last few months. It bothers me, because my baseline used to be around 100 or even lower. A couple of weeks ago I had a kidney biopsy done. I have a follow up appointment with my nephrologist on Monday, so we will discuss the results of the biopsy then. I imagine that it’s not anything dire or I would have received a phone call.
I also managed to sprain my ankle in mid November. I was just walking down the street after having just left the grocery store…and suddenly my ankle started hurting. I didn’t do anything to it as far as I know, but I guess it’s possible that I rolled my ankle and didn’t notice. All I know is that it was painful. When I sprained it, I was actually headed to the bank. I met a delightful man sitting in front of the grocery store entrance who was asking for change. I didn’t have any, but I felt compelled to give him something. I don’t always feel that way…but I did this time. I had made the decision to go to the bank, withdraw $20, buy a drink from Starbucks, and take some of that change and give it to the man. It was when I was on my way to Starbucks that this ankle shit started up. I almost said to myself to forget the whole thing and head for the subway so I could go home. But, since I had made this commitment in my own mind, I decided to follow through. The gentleman at the door of the grocery store seemed to really appreciate the gesture, and I felt good about it.
Two days later I spent the day at the hospital waiting and waiting. In the end, I was diagnosed. A sprained ankle with some torn ligaments sprinkled on top. I got an ankle splint as per the ER doctor’s suggestion, then off I went. A month has passed and my ankle feels much better-I’m not limping all over the place thankfully. But I want to give it time to heal properly.
Other than that, life is good. Greg and I just recently celebrated 10 months together, and I’m happy to have him. He makes me feel like the most beautiful woman in the world! He’s super sweet.
Speaking of Greg, he’s right beside me right now so I should probably pay attention to him 🙂
This past weekend was Thanksgiving weekend here in Canada. My weekend was packed and relaxing all at the same time.
On Friday evening, my boyfriend came to pick me up at home as soon as he finished work as per our usual routine. We stopped and picked up some hakka cuisine and headed to his place. We ate our food and headed to bed early, falling asleep to the sound of the tv playing in the background.
The next day, we headed to Pumpkin Fest, where, of course, we picked out a pumpkin. Before that, we went into an indoor flea market that was located right in the same area. We walked around and perused through the usual flea market fare- cell phone cases, wallets, and questionable brand name clothing. We stopped at their small food court and bought some food at a local Latin joint We got a tamale and pupusas. I liked the pupusas…but the tamale con pollo was not my favourite. That’s okay, though. We hadn’t yet reached Pumpkin Fest, and I knew that there would be food trucks there.
Greg is a big fan of watches, especially those silver coloured ones where the band stretches so you can put it on with ease. He picked himself up a few of those.
When we finally made it to the actual Pumpkin Fest, we went to the Rebozos food truck. I got 3 tacos for $10-two chicken and one pork. Anyone who knows me knows that I love salt…and maybe it is for that reason that I felt the chicken tacos could have used just a touch more…but it was delicious just the same. We also picked up a beavertail and some churros. Then, our pumpkins.
After we were Pumpkin Fested out, we headed to Starbucks for a quick coffee before heading home to watch a horror movie before falling asleep. 1408 was the movie of choice. Yup-pretty scary.
The next day was thanksgiving dinner day. It would be my first thanksgiving with Greg and his family. After a quick stop for some bread, breakfast, and cappuccinos, we picked up Greg’s uncle and Nonna before heading to St. Phillips bakery to pick up the cake. After that was done, it was time to head to Innisfil.
Dinner was great. There was an amazing spread of turkey, corn, rice, mashed potatoes, stuffing…you name it. Needless to say, I was stuffed. We had a bit of fruit and then had the cake. We sat outside for a while as it was an absolutely beautiful day. As the day grew dark, we headed back home. Thankfully, traffic was good to us both ways.
The next day (today), Greg picked up a very healthy breakfast for us at McDonalds as I stayed in bed and slept. After breakfast, we thought about what to do-movie, go for a walk, etc. With today being another gorgeous fall day, we decided to head downtown and just take in the good weather. Of course, Starbucks made its way in there somewhere.
We stopped and had some lunch at Toma burger (delicious!) The burger and the onion rings were both divine. I got a burger with chipotle mayo, cheese, caramelized onion, spinach, and some bacon which I asked for on the side. Greg got a more traditional burger with onion, cheese, and pickles. I gave him my bacon so he had bacon in his burger too.
While the meal was absolutely amazing, my favourite part of it was when Greg turned to me and told me what he was thankful for on this thanksgiving. He told me that he was thankful to have someone like me in his life, and how much he loved me. I held my tears back, as I definitely wasn’t expecting anything like that.
After finishing our meal and doing some more walking, it was time to head home, pick up my stuff, and for me to head home.
When we got home, it was at that point that I told Greg how lucky and thankful I am to have him. Every day with him feels like a dream that I never have to wake up from. We have been through some ups and downs as it relates to my health, and Greg has always been nothing but supportive and loving. One of my fears about being in a relationship was ending up with someone who didn’t understand (and didn’t want to understand) that sometimes I’ll have good days, and other times I’ll have bad ones. He is always there with a smile and a hug no matter what the situation is. I never have to call him, as he calls me every morning before we start our days, and every evening when he is finished from work..and after dinner..and just before bed. He makes me feel like the only girl in the world.
What are you thankful for this thanksgiving?
The last couple of months have been packed…in the best possible way. Blogging is actually pretty important to me. I definitely like the ability to look back at the good times..and reflect on the perhaps not so good. But, I’m glad it crossed my mind to write a life update, so here goes.
In May, my mom, dad, sister and I went to Italy! It was an absolutely amazing experience. We got to visit a number of amazing places, including Tuscany, Rome, Florence…It was all simply breathtaking. I feel infinitely blessed to have been able to go on such a trip. The fact that a good friend of my dad owns a house there and we had a place to stay as well as someone to take us around was absolutely phenomenal!
|Florence Italy by Night|
|Mmmmm Pizza from Move On in Florence|
|Gelato in Florence on my Birthday!|
|Mom, Me, and my Sis in Rome|
|Mom, Sis and I in San Grimignano|
I basically can’t wait to go back, This was my absolute favourite vacation ever! When it was time to come home a couple of weeks later, the first of our two connecting flights got cancelled. Now what?? Luckily, my Dad spoke to the people at the airport and they were able to make alternate arrangements for us. We went from Florence to Amsterdam to Detroit to Toronto. Phew! I would have been content leaving the airport after we found out our flight was cancelled. Maybe this was a sign that Florence is supposed to remain IN Florence! But, for the first time in probably my whole life, I was actually looking forward to getting home. Why, you ask?
|Because I had this face waiting in Toronto for me|
And now, here’s me, smiling like the Cheshire Cat with glee.