The other day, I received an email from Leapcure, a company that aims to expand the patient voice in clinical research. This amazing company was started to redesign the way researchers think about working with ...
The ability to work from home permanently is something I’ve always wanted. Being able to avoid the hustle and bustle of commuting downtown is especially ideal for someone with an autoimmune disease. The germs and ...
I belong to several lupus groups on Facebook. In the last several weeks, I cannot even begin to count the number of people who have said that they cannot get their hydroxychloroquine because their pharmacy ...
Hey all, I just wanted to write a quick post to let you know that I’ve been featured on the Chronillicles blog! Georgina, the face behind this blog, gave me the opportunity to write a ...
Ok, I know, I’ve (again) been slightly MIA these past few weeks- but I definitely had to hop on today to talk about a great book that’s coming out soon. It’s called Fabulupus! What’s better ...
I wanted to take a minute to write about some interesting info I had received earlier this week. This info is with regards to lupus nephritis study that is currently seeking volunteers! A small pharmaceutical ...
Yesterday was the 4th annual Flare for Fashion show, a fundraiser for Lupus. I had a blast participating in it. The event took place at the Liberty Grand. I thought I was off to a ...
When I turn on the TV, I see plenty of commercials. I’m happy to see commercials about Lupus. Lupus is such an unknown disease, and anything that can be done to bring lupus awareness to ...
So yesterday, after my insanely long doctor’s appointment, I headed out to get my hair done. I did this because today is the day that we meet and do the filming of the personal stories ...
While I was on facebook, I stumbled upon a group created by a young man with Lupus. His goal is to raise Lupus awareness. His main arguement is the fact that many other diseases and ...