The other day, I received an email from Leapcure, a company that aims to expand the patient voice in clinical research. This amazing company was started to redesign the way researchers think about working with ...
I belong to several lupus groups on Facebook. In the last several weeks, I cannot even begin to count the number of people who have said that they cannot get their hydroxychloroquine because their pharmacy ...
Hey all, I just wanted to write a quick post to let you know that I’ve been featured on the Chronillicles blog! Georgina, the face behind this blog, gave me the opportunity to write a ...
When I saw my transplant nephrologist on Monday, he agreed that now was the right time to begin operation prednisone taper (and ultimately discontinue). I’ve been on prednisone in varying amounts since I was first ...
I’ve been spending a lot of time at the gym these last few weeks…it’s just part of my routine now. I didn’t go today because I took out my twists, then I had to give ...
The other day was my first rheumy appointment with the doctor taking over for my previous rheumatologist. I almost always have mixed feelings when I have to see a new doctor. It worries me when ...
My bro is cleared for transplant! Now, all I have to do is get MYSELF ready, aka stop dropping my hemoglobin and hopefully simmer down what appears to be an up and coming lupus flare…and ...
The end of the week is near and it couldn’t have come any sooner. I administered my last dose of venofer yesterday. I hope it is working somehow. I still feel pretty tired. Other changes ...
I’m getting worried about my blood work. I last did blood work in early October. My forever dropping hemoglobin at that time was 66 (or 6.6). I don’t have an appointment to get a scope ...