The other day, I received an email from Leapcure, a company that aims to expand the patient voice in clinical research. This amazing company was started to redesign the way researchers think about working with ...
I belong to several lupus groups on Facebook. In the last several weeks, I cannot even begin to count the number of people who have said that they cannot get their hydroxychloroquine because their pharmacy ...
Hey all, I just wanted to write a quick post to let you know that I’ve been featured on the Chronillicles blog! Georgina, the face behind this blog, gave me the opportunity to write a ...
When I saw my transplant nephrologist on Monday, he agreed that now was the right time to begin operation prednisone taper (and ultimately discontinue). I’ve been on prednisone in varying amounts since I was first ...
I wanted to take a minute to write about some interesting info I had received earlier this week. This info is with regards to lupus nephritis study that is currently seeking volunteers! A small pharmaceutical ...
As I promised in the past, I took a picture of each of the medications that I take. Pantaloc- I used to use this twice a day for my reflux, but I was told that ...
Today was my oncology appointment. For the other few times that I went to see my oncologist, I did not have to see a fellow. I have to say…I was slightly disappointed when a fellow ...
As I mentioned in another post, I had noticed some weird, confetti-like white spots on my face. I don’t know where they came from or what they are from. I kind of stopped noticing them. ...
Yesterday was my appointment with the plastic surgeon Dr. Bray and also with my nephrologist Dr. Richardson. The bad news started the moment I stepped up to the secretary at Dr. Bray’s office. I presented ...
Truth be told, sadly, this is no where CLOSE to the most amount of pills I’ve had to consume in a day. In the Morning…. ….and at Night I’ve already discussed Prednisone and Naproxen in ...