Today marks my 2 year kidneyversary! The days, weeks, months, and years leading up to my transplant were difficult. There were a lot of setbacks, and at times I really didn’t even think it would happen. At times I wondered if it was even “meant to be”. But then, when my brother and I actually received a transplant date, everything became “real” again. But the date was more than a month away. I was still afraid that something would happen beforehand which would cause the surgery to be cancelled…or perhaps an emergency would come up and my surgery would need to be cancelled.
Sure enough, about 3 weeks or so before the scheduled date of my transplant…I caught a cold and my sinuses went crazy. Perhaps not the best thing to do, but I was afraid to go to the doctor to get it checked out because I didn’t want my surgery to be cancelled. So, I went on a mission to heal myself. Neti Pot, over the counter cold medicine, pain medicine, lemon+honey+hot water…you name it, I had it. Miraculously, I got over my symptoms about a week before my scheduled surgery. *whew*!
I’m glad, as I was counting down the days before I’d no longer need to insert large needles into my arm. Counting down the days before I wouldn’t have to “plan ahead” before going to the washroom in the middle of the night. That was one of my least favourite parts-having to stop my machine, disconnect myself, flush my lines, and recirculate my machine because I had to go to the washroom…and my machine would beep every 15-30 seconds while recirculating. Disconnecting didn’t take TOO long, but anything more than getting up and heading straight to the wash room is a LONG time when you REALLY. NEED. TO. GO.
But alas, I’ve managed, thank God, to make it through 2 years with little to no issues related directly to my kidney. I am so thankful to my brother for giving me this amazing gift.
Here’s to many, many more kidneyversaries.
After coming home from work, I studied, ate, and studied some more. I’m pretty comfortable with the material that will be on my Project Mgmt test tomorrow, but I went over everything else in depth just to be safe. My plan was to study until about 8:30pm (5 minutes from now), set up my machine, watch a little TV, hook myself up to my machine, then get a good night’s rest. Now…I’m not so sure.
I’m sitting on my bed typing away as the curtains to the open balcony door thrash away in the wind. I can see (and hear) the beginnings of a thunder storm. I have unplugged my poor laptop from the main power and am using battery power, lest the storm zap my power and my computer as well!
Speaking of power zapping…the last thing I want to do is put myself on my dialysis machine for the night, only to be awaken by my machine alarming because the power has gone out. This alarm means “step lively…you only have 20 minutes to rinse back, disconnect, and clot before this machine kicks the bucket. And if that happens, as you can imagine, it would be very disruptive to much needed rest and relaxation before a day with 2 exams. I dunno what to do! What I really hate is when the lights go out…but then they only go out for maybe 5 minutes…at which point I’ve already begun the rinse back process (rinse back = I’ve already told the machine to end dialysis and give my blood back). And once that process is started…there is no reverting back!
In the past few minutes the rain has really started to come down. I just stopped typing for a moment so I could go and get a flash light which I have now placed in my pocket.
I think it would be best to skip dialysis tonight. I was very much looking forward to an amazing night’s sleep, which I certainly get while I’m dialyzing (seriously. I sleep really well once I’m on dialysis…probably because I feel very exhausted shortly after I am connected to my machine and dialyzing away).
The lightning is flickering outside my window. I think I made the right decision. I almost hope the lights DO go out so I feel justified in my decision. Haha.
Well, I think I’ll go study for my computer test until my computer’s battery dies.
Oh oh, I got my marks for my project management assignment. This is the group assignment where we pretended to plan a concert to raise funds for Lupus research.
On the project book that we handed in, we got 79/100
On the presentation we did, we got 96/100.
Not bad…not bad at all! I kinda wish we got higher in the project book.
**woot! the lights just flickered on and off for a split second. I am sooo vindicated in my decision**
Actually, it was more like 7 hours and 20 minutes. I had about 35 minutes left or so and I really had to go to the washroom so I just decided to retransfuse. I had already used the recirculator that I had out earlier in the night.
Last night, I was all set up and ready for dialysis. I had been on for about 20 minutes when I kept getting arterial pressure alarms. Great…JUST GREAT. This was the same needle/buttonhole that was giving me problems a few days ago. I knew I couldn’t be lucky enough to have a hitch-free first dialysis…
Luckily, as instructed by Rose, I had my recirculator and my saline syringes set and ready for action!
Tada! My Recirculator!
I recirculated my lines and removed the offending needle. It was so close to the tape of the venous needle that I couldn’t hold my gauze against it properly at first so I had some dripping.
After that, I recannulated. I reattached my lines and away I went. Much to my surprise, the rest of the night was pretty uneventful. No alarms, no beeping, no changing of any bicart or acid….nadda.
Below are some of the pictures from my first day. I was happy to receive a phone call froo Rose this morning. She called me (on her day off, might I add) to check up on me. How lovely! 🙂
Dang you, arterial! (arterial – the needle on the right)
This is my machine
My Screen. It’s “self testing” right now 😛
Hopefully tonight goes even smoother…and hopefully I remember to give myself my aranesp! I forgot yesterday. And friday night is my day off! 🙂
When I woke up, as I mentioned, I had to go to the washroom so I came off early. I wasn’t feeling great. My stomach hurt a little bit, but not nearly the same as during conventional in-centre dialysis, so I’m happy about that. I’ll remain confident that it’ll slowly go away as my body gets used to regular dialysis!