It has been just over a year since I started my role in HR. So, what’s the deal?
It has been just over a year since I started my role in HR. So, what’s the deal?
The inevitable happened-i’m properly sick. I have a runny nose, cough, and my regular fatigue on top of that isn’t helping either.
One of the advantages of my current role is the ability to work from home if need be. Just today my access request was completed to give me access to working from home. I tested it out today. It took a little while for me to get registered and figure out what to do, but I managed to get everything done.
Another advantage of my current role is the ease with which I can simply let my manager know that I need to rest and therefore will be coming into work later on in the day. Assuming there aren’t any matters of specific urgency, it’s great having such flexibility.
Now, time to go and get my fill of my fluids.
I went to the pharmacy the other day to pick up some epo which I am to use once every two weeks to help with my lack of energy. I injected my first dose two weeks ago, so I’ll be doing the second this week.
I tell ya, it’s been a battle. The part that sucks is that my body won’t let me sleep in very much on the weekends. Midday naps have been my saviour when possible.
In light of this, I asked my manager last week to grant me access to citrix, which is essentially a small device that I can use to log into my computer from home and actually have access to my work information. On those days when I feel like I just can’t stomach the commute to work, I can wake up, log in, and still get my work done. He gave me permission to set myself up with citrix, so I’ve submitted the appropriate online forms to give myself access.
Otherwise, work is going well. I’m sad though, because Friday was my manager’s last day before he goes on to a new role. Thankfully his building won’t be far so we can still meet for lunch now and then, but reporting into him has been amazing. He gave me a chance in HR when no one else would. He believed in me, and I’m glad that I was able to join this amazing team with amazing people and thrive. I’m not sure how he can be replaced, as he’s just so brilliant.
Anyhow, I’m going to go and wash this facial mask off of my face and get myself ready for bed. I’m beat..!
It has been two months since I started working at my new job…and time sure does fly! I’m pretty well versed in all of the tasks, though I’m still learning every day which is great. Being in this environment is so rewarding. It feels good being on a team where your presence makes a distinct difference. I’m so used to being in a role where I perform tasks similar to hundreds of other people, and the contribution that you make often gets lost. In my two months at my current job, I’ve already received 7 emails of thanks from my co-workers-2 from my colleagues, one from my immediate manager, one from a senior manager, one from a director, and 2 from senior directors (one of them being my one-up boss) . I didn’t know (or have forgotten) what it feels like when someone acknowledges the fact that you went out of your way to find a solution to the problem they’re having.
Earlier this month, I started a once a week course of IV iron which lasted 3 weeks in total. I’ve been feeling really tired and getting up in the morning was becoming increasingly difficult. I’ve been fighting through it, as after I get up, get myself ready, and prepare to get out of the door, I feel better. But I’ve taken up drinking coffee, something I’ve never gotten into before. In my previous role, I’d have likely called in sick if I felt this way. Being glued to a desk and dealing with people would simply be too difficult. Also, people rely on me in my current role. If I wasn’t there…lots could and would go wrong.
So after completing this 3 week course of iron, I waited until this past week to do bloodwork. What I found was that my hemoglobin was still low. Honestly, I didn’t need a blood test to tell me this; I could feel it.
This weekend, Greg and I went to the Ex on Friday after I finished work. We got there around 5pm, and by 8pm I was so done. We got home and were pretty much in bed and asleep by 10pm.
The next day, we woke up and were on the road to Innisfil. Greg’s parents are away on vacation so he’s watching the dogs. We got to Innisfil, went shopping, and marinated the meat we bought for the barbecue we would have for dinner. Greg went outside to water the tree/lawn, so I went to lie down on the couch and cuddle with Primo. Before I knew it, I was full out sleeping.
Later on, we had our barbecue, took a shower, then hopped into bed. It was 8:30pm! By 9:30 or so we were both out cold.
The next day (today) we went to Nandos for an early dinner then came back home. We went to bed just to lie down with the dogs…again, fell asleep for an hour.
I called my nurse and left her a message asking her to look into my bloodwork to see what can be done to raise my hemoglobin, because this tiredness is getting to me!
A week or so ago, I got a message from my kidney transplant coordinator. She told me that my nephrologist had gone over my blood work and decided to drop the dose of one of my immunosuppressants. My dose at the time was 12mg a day and he wanted me to drop it to 10mg a day.
I thought ok, that’s cool. I currently take four 3mg pills of this medication. It’s called advagraf. I happen to have some 1mg pills left over from last year, so I’ll use one of those pills and three of the 3mg pills. In the meantime, I responded to my transplant coordinator and asked that she call my pharmacy and leave a prescription for 10mg pills of advagraf for when I’ve run out of my current stock. I asked her to do 2 months per refill, as I usually ask for 3 months. There is a reason for this, which I will explain shortly.
For most of us, the start of the new year signifies a new beginning. Some people establish New Years’ resolutions. Others simply see it as a clean slate. Me, I get a small sense of dread. I feel this dread because I know the deductible period for my medical coverage through work starts again. That means that the first few prescriptions that I fill will cost me an arm and a leg.
As my current cache of advagraf began to dwindle, I know the time is near for me to fill this new prescription along with some other ones that are coming due as well. Not wanting to be paralyzed by sticker shock, I called my pharmacy to ask what the damage would be for just that one medication. $314.12. I cheerfully thanked the pharmacy tech that I spoke to. I didn’t want to let on that I felt like I was gonna throw up. I feel this same way every year at this time.
When I told my transplant nurse to only give me a 2 month supply, it was because I knew it would cost me a whole bunch of money at once if I filled 3 months worth of advagraf at one time.
This one prescription costs me much more than half of my biweekly payroll deposit, and I almost always get 3 or 4 other prescriptions at the same time-pretty much an entire pay cheque. I also get coverage from the government-all I have to do is submit my prescription receipts and they will reimburse me some money based on the amount of money I make. Pretty cool, huh?
I’ve learned to stop wasting my time by mailing those receipts. I send these receipts and wait from 3 weeks to a month for a response…not including the occasions where things went wrong and things got delayed. My receipts were never received, so I had to go back to the pharmacy and track down all these receipts again and resend them; they don’t want photocopies. Or, there is a certain code missing from the prescription, and without that code, they cannot assess my claim. Gotta go back and have my doctor write a note with the code, or write a new prescription. I always get a response back telling me that I would be betting zero dollars back, as I haven’t yet reached or surpassed my deductible. On the few occasions where I’ve actually gotten a few bucks back…they send you a letter telling you how much you’ll get back…then they MAIL a cheque about a month later. How about saving some time and sending me the cheque with the first letter!?
Hard core digressing.
I work part time right now. I’m looking for full time work in my field…but at the same time, I’m kinda scared. I’m scared that I won’t be able to work full time. I’m scared that the stress of 40 hour work weeks will be too much. But I cannot stay in my current job either, as I actually really dislike what I’m doing. I’ve been doing this going on 13 years now…and I’m ready to move on. If I don’t work full time, I’ll never be able to move out from my parents’ house to a place with my boyfriend. But, if I do work full time…am I setting myself up for failure? If I do move out and work full time…sure, I’ll be making more money, but my other expenses will increase exponentially as well.
I don’t know…I guess all I can do is try. The role I’m in makes me feel tired, drained, and unmotivated. Maybe if I’m doing something where I feel challenged…challenged in the right way…i won’t feel so tired, drained, and unmotivated. Maybe a change of scenery would be good for me.
I’m currently making what I feel are the appropriate moves to help me go in the direction that I’m looking to go. I’m not the first one with a medical condition to work full time…all I can do is try. Only time will tell.
…nothing. Nadda. Ziltch.
Today was one of those days that were doomed from the get go.
I woke up today at the time I would normally wake up if I was gonna get up and go to work-5:45am-ish. I realized that my stomach was absolutely KILLING me. Why, you ask? One of the many benefits of being a woman-terrible, terrible CRAMPS.
Now, I discussed my awful cramps with my gynecologist when I went to see her last month. She suggested I take a small dose of naproxen to help with the pain. I did this last month, but my creatinine has been on a steady increase- my baseline is in the 90s (or 9.0ish) and has gone up to 120-ish (12.0ish). Not normal. Now, my transplant coordinator thought that me taking the naproxen might have had something to do with the sudden spike in my creatinine, but I disagree. It seems like my creatinine was on a steady increase ever since I stopped taking that horrid drug known as prednisone.
But, as usual, I digress. I woke up today with the thought that I would do some blood work today, but not so. I cancelled my blood work appointment at the local lab and decided that I would go on Thursday (the day after tomorrow) as my cramps seem to settle down after the first couple of days of my period have passed. So, I took one single OTC naproxen pill this morning. Let me tell you how that pain got up and left within 30 minutes. It was a thing of beauty.
Now, what’s the big deal with taking Naproxen, you say? Well, naproxen, along with advil, are NSAIDs, or non-steroidal anti-inflammatory drugs. NSAIDs and kidney issues don’t seem to go hand in hand. I think it might be because NSAIDs are metabolized in the kidney, whereas drugs like acetaminophen, or Tylenol, are metabolized in the liver. Now, the above paragraph may be completely made up and I’m still in the “I’m too lazy for this” mode, so I’m not really into doing too much research right now, but feel free to correct me if I’m totally wrong. The same goes for proofreading this post.
So, the whole point of me taking them was to take it sparingly. It has been well over 14 hours since I had taken one single pill and I still feel good in terms of my cramps. It’s crazy how the one drug that can very quickly and easily resolve this pain is not the “best” for me. And no, taking a Tylenol for cramps is not sufficient and is, in fact, an exercise in futility.
Oh, I was also a crying, dribbling mess today. Just because.
So as I’ve mentioned many times, I went back to school and took HR. Finding an HR role has been difficult to say the least, but I’ve certainly been looking.
Recently, a few entry level HR roles have come up within my current place of employment. I’ve applied for them and have put my best foot forward. So, I’d ask you to keep me in your thoughts. Cross your fingers, pray, whatever it is that you do…please do that for me!
You know, I’ve been here looking for a new role for a while now, as I really feel like it’s time for me to get out of what I’m doing right now. I’ve been doing what I do now (CSR) for nearly 11 years…and I think it’s time to move on. But, at the same time, I feel almost…paralyzed with fear when it comes to moving to another department, or another job.
I’m afraid of getting sick. A day here and there isn’t bad. But lupus is so unpredictable, and my hemoglobin levels have been less than stellar these days. I really, REALLY want to get out of what I’m doing right now, but, I know that if for whatever reason I had to take time off from my current role due to illness, my role would still be there for me when I return.
I know that It’s not really a good idea to live in the “what ifs”, and just go for what you want. But, when you have a chronic illness, it’s always something that lingers in the back of your mind. The last thing I want to do is fail, or have to give up my role. All I can do it my best, I suppose, and hope that wherever I end up has management and colleagues as understanding as they are in my current role.
Wish me luck.
Today was my first 8 hour day back to work since my knee surgery. It was a long day because I had a lot of complicated and time consuming client problems to deal with, plus next week is casual dress week for those who donate money to a charity that my employer is working with. My manager is away, so it was my job to go around and get the donation money, create check lists, etc. All in all, I made it through, but I’m glad to be home to relax. In any other situation, I’d have been back to work at full capacity by now, but for some reason, my hemoglobin has been very stubborn! It’s lingering in the 92-93 level (9.2-9.3 for my downstairs neighbour American friends). It’s been like this for months, in spite of suffering through months of iron pills (iron pills are the devil when it comes to your stomach). Looks like it’s more spinach and steak for me..!
This weekend will be a busy one; I’m doing birthday related activities with friends (my birthday/mother’s day is on Sunday). I’ll be meeting one set of friends tomorrow for lunch, and another set for dinner. With Sunday being mother’s day, that day will likely be more geared towards mother stuff 🙂
Well, the very act of leaning on one arm to type this entry is making me lazy/tired, so I think I’ll end it here. Let the birthday weekend festivities begin! (Can’t wait to get my free starbucks-mmmm!)
Ok, I stand by my statement. Healing after surgery like knee replacement can certainly cause extreme fatigue. However, based on my history and for “just in case” purposes, I got blood work done a few days ago.
Lo and behold-my hemoglobin was 86 (8.6 for my American friends). Looks like my body didn’t quite bounce back after the blood loss suffered during my knee replacement. So what’s next? Well my transplant coordinator wants to know if my iron stores are high or low, and that will dictate the course of action. It’s either gonna be IV iron, or aranesp (EPO).
I’ll keep you posted. *sigh*…I’m soooo full of fun/surprises. Never a dull moment..
In the days following my knee replacement, I’ve had trouble sleeping. This was mostly due to pain as well as simply being unable to get comfortable. I’m a side sleeper or a stomach sleeper. After surgery, my available sleeping positions were, of course, pretty limited.